What should we do
with IPF today?
WithIPF helps patients and carers turn daily symptoms into practical plan, from routine activities, pacing the day and planning ahead.
Clinical tools help doctors monitor IPF and improve clinical care. WithIPF helps those who live with IPF to make the most of their daily lives.
Built around the day, not the diagnosis
Everything in WithIPF is designed to answer one question: what should we do today?
Daily check-in
A short log of breathlessness, energy, mood, appetite and activity. The trends over time help to see the patterns and identify what might help in the moment.
Shared visibility
Patient and carers see what helps. Support teams are made up of different groups, from immediate family, to wider circles of friends and service providers. Coordinate the day together from the shared updates so that supporters can see how and when they might be able to help.
Today's practical plan
Based on how you're feeling, get grounded suggestions: ask for help with an errand, try a light walk, switch a menu or try a different oxygen therapy device. Your patterns inform your priorities.
Emotional layer
How do we get through today? Support for the psychological weight of IPF, for the person living with it and the people who love and support them, for today and for what comes next.
Clinical data translated
Connect readings from clinical monitoring apps. We help you understand what the numbers mean for today and help inform your next clinical appointment.
IPF supplies
The products and services that might improve quality of life for people living with IPF can vary and some of them are hard to find or frustrating to use. We find them, demonstrate how to use them and identify ways to pay for them.
A few minutes each morning. A clearer day ahead.
Patients and carers can access the common diary to share breathlessness, energy, appetite, mood, oxygen use, dizziness and and activities.
WithIPF uses those signals to suggest a practical plan for the day, grounded in the key indicators of wellbeing and translated into practical decisions that a patient and their carers can actually make.
Over time, the patterns become visible. Good days and hard days. What helps. What doesn't. Something you can take back to your care and clinical teams.
Thursday, today
Morning check-in
Today's suggestion
Energy is low today. Consider a seated shower and keep plans light this morning. Banana sandwiches for lunch. There should be a cool breeze early this afternoon and you could do a lap around the garden then.
Face the hard days and look ahead to the good ones together
Patients, carers, and clinicians who use withIPF find that adapting to the conditions of the moment can help to work with the challenges of the condition
The sharing settings helped us to let people know when visitors might be welcome or not.
Learning to operate the oxygen tank was frustrating, the cord is limiting and the power banks were unreliable. Once we found a reliable device, we had more confidence to go out.
This doesn't pretend to be a clinical tool. It helps patients and carers live with the day-to-day and to share the insights with the clinical team.
Adapt to IPF
Manage the day with IPF
Patients and carers who live with IPF can coordinate around the challenges, get support and suggestions for optimising their daily lives.
This is not medical advice and does not replace the advice of your healthcare provider. Always work with your care team.